Casey and Lisa brought their kids down to the zoo on Saturday, so they were kind enough to stop by the house and dump some clothes in some bags for me and bring them by. On that note, I would like to thank everybody who has sent loves, prayers, gifts, and kind words during this time and the past four months. The prayers obviously worked because Hayden surprised us all and is doing much better than what I thought he would. I would also like to let everyone know that I might have missed some phone calls and not replied to some questions on Facebook. If you have a question, please send me a private message. E-mails are coming through on my phone like crazy and most of the time, I don't even go to Facebook. I just read the e-mails. However, I don't want you to think we are ignoring you. Basically, if a question is asked on a picture post, I usually forget to go back and answer your question. Thank you again for everything! On Monday, I was able to make a "quick" trip home and do some long-term packing. I hoped to be at home for no more than 3 hours. However, it is kind of hard to fit 2 days of work into 3 hours. I ended up not leaving Quincy until about 3 hours after I had originally planned. I even tried to pick up the house, somewhat....but I know it wasn't like what I should have done. I didn't like being gone and the longer it took, the more frustrated I became because I wanted nothing other than to be back in St. Louis with Kelsea and Hayden.
|Dad was able to snap a picture in between taking|
out the drainage tube coming from mouth and before
inserting NG tube through nose. It is amazing how much
he has changed in 6 short days!
|Future Blue Devil right there!|
The past few days, we have been trying to feed Hayden breast milk through his NG (feeding tube). However, he has not had the easiest time digesting the food. On Tuesday, he spent most of the morning and afternoon spitting up the milk that his stomach couldn't handle. It was not fun to watch, but part of the process of trying one thing to the next to find out what exactly works. They have tried different amounts, different times, different position, and even added Pepcid (I think) to help him digest. He made it about 31 hours without spitting up his food and even seemed to be digesting a little bit. Or at least there were signs that his stomach was working to digest the food. This is a common problem that babies with Omphaloceles deal with and it is just a matter of trying to get the systems to work and usually is just trial and error.
|Whatcha talkin' bout Willis??|
Kelsea and I were able to get into the Ronald McDonald House (RMH) at by 270. This is a beautiful complex which is basically brand new. It was built 2.5 years ago and was the 300th RMH, so it was kind of a big deal. However, I have to admit, last night was, without a doubt, the hardest thing I have ever had to do. Every night for the past 5 nights, when we have left Hayden, I didn't feel like we were leaving because technically, we were still under the same roof. Even if it was a 8 minute walk to Kelsea's hospital room, it was still under the same roof. However, last night, actually having to get in my truck and drive away....it was difficult. I know we are only 15 minutes away and he is in the best care possible, it was still hard. Kelsea and I are trying to be patient with each other, but sometimes (many times!) it is difficult. We are trying to lean on God, but we are humans and selfish and we get caught up in what we want and what is best for me. When we do that, things don't work out. It is a constant struggle between what I want and what God wants. It has been easier with Hayden here because most of my decisions have been made based on him. However, at the end of the day, I still think about myself.
|This what we will call "The Thinker"|