Wednesday, December 11, 2013

Prayers to Seattle

As many of you have seen, either on my Facebook posts, Kelsea's, or my dad's, we have been asking for a lot of prayers lately, and they haven't been for us. They have been for our good friends, which we met through the Mother's of Omphalocele's  Facebook page, the Christiansen's out in Washington. I have mentioned quite a few times before and have briefly told their story and asked for the occasional prayer for them.

Well, lately, I have been asking for more than the occasional prayer. I have been asking all of our friends and family for full fledged, all-out, hard core prayers for them. A week and a half ago, their 10 month old son, after spending the first 60 days in the NICU and the past 133 days in the ICU at Seattle Children's, they had a day no parent wants to experience. They were losing their son Gavin and didn't think he was going to make it. At first, Carly didn't really say how bad things were, but I told Kelsea that I had a sinking feeling things were worse than what she was letting on in her Facebook page where she updates us all about Gavin. Through the week, her posts became more grave and serious and things were not looking good. Although nobody was ready to give up on him, I think many of us thought God was ready to call Gavin home.

It was last week that the call for prayers went out and they spread like a wildfire. It was amazing, rejuvenating, and comforting to see our friends and family, complete strangers to Carly and Ryan, put them at the front of their thoughts, even if it was for just a minute during the day. Slowly, prayers started to be answered. Over the past few days, Gavin has made remarkable strides. It was so great to even see a picture of him today. I know Gavin has not looked like himself and that is one of the hardest things for a parent to see. You child hurting and not even looking like themselves. Gavin still has a long way to go and he is by no means out of the woods yet, HOWEVER, he's fighting to get there.

We don't know what God's plan is, but I am asking each and every single one of you to please say a prayer, or continue to say a prayer for Carly, Ryan, their son Gavin, the doctors, nurses, and everybody else who has a hand on this child.  Ryan is trying to get away from work with FMLA and Carly has been in Grad school. They are an hour away from home, family, dogs and are living the hospital life. Please also pray that it be a part of God's plan that he help them financially so they can be together as a family and not worry about financial matters.

Although they have had some positive steps forward, the first in MANY days, they need more. I know they are struggling and they are worn. Even reading the positive posts, the song "Worn" comes to mind.

I am praying that God shows them a sign. Greater signs than what He has already shown them this week and let them know that God's plan is great and to continue to trust in Him.

On June 28th, 2013, I was worn. However, in my darkest hour. At my weakest point. God took care of things and showed me a glimpse of His plan. Please take a minute and read my post from that day. June 28th - Big Brother and God

I am also finishing today with by including Carly's latest posts from today. I haven't asked her for permission to repost these, but right now, I don't care if she tells me no! The following that Gavin is getting, the prayers and love that is being sent out to him, the connections and conversations people are having with our Heavenly Father are far too important. Now, as Bob brought up the other night, hopefully Gavin won't look me up in a few years with some HIPAA lawsuit!

Facebook Post from 12/10
Gavin has had a great 24 hours. He tolerated all of the medication and oscillator weans with flying colors today. Some medications were totally stopped and the labs that measure how he is doing with the oscillator weans have been great. The plan is to keep weaning as he tolerates. It would be so great to get him off of the oscillator because we will be able to get him off of the medication that keeps him paralyzed. All in all it was a 24 hour period that is worth celebrating. The medical staff has slowly started smiling more and I even saw Ryan get a high five from one of our favorite ICU doctors. We are amazed at the miracle we have been witnessing. We pray the progress continues!

Facebook post from earlier today - 12/11

This photo is Gavin's IV pole! The significance of the photo is that some of them are not lit up! Sunday they didn't have enough access for all of the meds he was on. This is visible progress. We just finished up morning rounds and everybody continues to be happy. We are making two more vent weans today as long as he tolerates them. Gavin also made the most urine he has made since this all started last week, which is so encouraging. He continues to just look so much better. His skin is pink and his pulses are better than they were last week. Also, last week his omphalocele was huge, swollen, and angry looking. Today it is smaller and less angry looking. There is a hypothesis starting that the C Diff (bacteria that causes digestive illness) Gavin tested positive for might have ca...used this. If this is true, there is even more of a miracle going on because Saturday morning I woke up and just felt like Gavin needed to go on a specific antibiotic, which just happens to treat C Diff. We had a phenomenal attending on Saturday and she listened to my intuition and put him on it. Unfortunately he didn't get a dose until late Saturday, but either way he had been getting better and Dr. Brogan said he would hedge his bets on the antibiotic I felt he needed. Everybody agrees he is getting better. Monday will be a huge milestone of the progress is still going on. Ryan and I are just blown away by this kid. He is tough as nails.

 Even though this post isn't about us, here is a picture from a few weeks ago....only because it has been so long since I have given an update on Hayden. I promise one will make it before Christmas (or New Year's Eve)!

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